Over the last year, I have enjoyed blogging here and there about key events in our family’s journey. When a post comes to life, it is strictly because the Spirit has moved in me and I literally HAVE to write it down. My prayer is that there is a reason for that prompting and that…

When you have a child like Hayden, there is a very tangible reminder of how much grace my family and I need. When you see a family struggle with taking care of their child and his medical needs, doctor appointments, therapists, anxieties and panic, and all the other things that come along with a special…

From personal experience, go with me here for just a moment… The enemy [Satan] comes to KILL, STEAL and DESTROY. (“The thief comes only to steal and kill and destroy…” John 10:10) Sounds rude, right? He is! Sorry to bring up this huge bummer in our “rainbows and lollipops, Politically Correct” world we live in.…

Every little girl has hopes and dreams of being a bride. Every little girl has an imaginary wedding and the most beautiful veil she can fashion from the biggest pillow case her mama keeps in the house. Every little girl takes care of her baby dolls and mothers them with the utmost care. Right? I…

This blog post is a little different than my usual posts. I originally posted this on Facebook as a way to explain to our family and friends why they have seen our son, Hayden’s, presence on LinkedIn – a networking site for professionals. Our son is eight. He is a treasure. If you’d care to…

As the pages of this blog have slowed down over the last couple of months, it was not without good reason. My son came off of two substantial illnesses that left him in PICU for 17 days total and when he came home, his body had much healing to do. His body is healing more…

In about one hour from now, one of mine and my son’s favorite artists will be getting on stage for a concert in my hometown. The wheel chair accessible tickets my mom purchased for us to enjoy are being used by someone else. Someone else will enjoy the concert and hear the beautiful music that…

I have always heard how weekends are difficult for widows because the routine of the week is on hold and the reality of being alone becomes more palpable. I would venture to say those same feelings transfer to my own special needs family. During the week, we are going, going, going – doctor appointments, therapy…

Hayden’s most recent hospitalization was a trying time on all members of our family. For Hayden, of course, as he wasn’t feeling well and was fighting a bacterial pneumonia. As mom and dad it was difficult on us, watching Hayden in pain and also managing the rest of life’s duties. But for Hayden’s younger brothers,…

On this October night, as my eight year old son lays in his bed in the Pediatric ICU, I can’t help but reflect on another October night when my infant son laid in his warmer in the Neonatal ICU fighting for his life. Fighting is nothing new to Hayden. He’s done it since the day…