In about one hour from now, one of mine and my son’s favorite artists will be getting on stage for a concert in my hometown. The wheel chair accessible tickets my mom purchased for us to enjoy are being used by someone else. Someone else will enjoy the concert and hear the beautiful music that…

I have always heard how weekends are difficult for widows because the routine of the week is on hold and the reality of being alone becomes more palpable. I would venture to say those same feelings transfer to my own special needs family. During the week, we are going, going, going – doctor appointments, therapy…

Hayden’s most recent hospitalization was a trying time on all members of our family. For Hayden, of course, as he wasn’t feeling well and was fighting a bacterial pneumonia. As mom and dad it was difficult on us, watching Hayden in pain and also managing the rest of life’s duties. But for Hayden’s younger brothers,…

On this October night, as my eight year old son lays in his bed in the Pediatric ICU, I can’t help but reflect on another October night when my infant son laid in his warmer in the Neonatal ICU fighting for his life. Fighting is nothing new to Hayden. He’s done it since the day…

As an individual living a completely unique life, I often find myself in a never ending cycle of a “Catch 22.” You know the term. catch 22 – (noun)  a dilemma or difficult circumstance from which there is no escape because of mutually conflicting or dependent conditions; a “catch 22 situation” That’s me. That’s the…