special needs

Shoe Fall, Don’t Bother Me

Our family does have fun, but it is work to master it all. Yet we do it. Because we want to enjoy life, no matter what it looks like. Life is a gift and we try and treasure each day we've been gifted and use it to the most of our ability. 
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What are you working for today?

What are you working for today? - Looking at life through an eternal lens.
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Perspective Providers

I sit down right now in front of my computer as Hayden sleeps, uncomfortably, with a low grade fever. He has been on his vent all day for extra rest time as well as additional treatments as he battles what, most likely, is a virus. Something you and I would just deal with, take a…
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Perspective Providers

I sit down right now in front of my computer as Hayden sleeps, uncomfortably, with a low grade fever. He has been on his vent all day for extra rest time as well as additional treatments as he battles what, most likely, is a virus. Something you and I would just deal with, take a…
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The Sore Truth

There are so many things that are unfair in this life. This evening we discovered what (at this point) we’re assuming is a pressure sore on Hayden’s back. He’s never had any pressure sores any where so this is a brand new experience for us. Something that’s not a new experience, though, is my brain…
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Cheers!

As 2016 comes to a close and I reflect on all it brought myself and our family, my gut reaction is to scream “good riddance!” This year was one of loss and heartache, struggle and fear. But it was also a year of hope and relationship. This was a year that through leaps of faith…
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*Insert Shameless Plug Here*

Over the last year, I have enjoyed blogging here and there about key events in our family’s journey. When a post comes to life, it is strictly because the Spirit has moved in me and I literally HAVE to write it down. My prayer is that there is a reason for that prompting and that…
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It’s a Give and Take

When you have a child like Hayden, there is a very tangible reminder of how much grace my family and I need. When you see a family struggle with taking care of their child and his medical needs, doctor appointments, therapists, anxieties and panic, and all the other things that come along with a special…
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Johnna Hensley

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