Spina Bifida

A Square Peg in a Round Hole

I’ve thought a lot lately about how to label what it is I’m passionate about and what it is I do {in all my free time}. I landed on the term “Bridging Gaps.” What type of gaps am I trying to bridge, you may wonder. There are many kinds, but I would say the largest…
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Easter Memories Old and New

Fourteen Easter seasons ago Ryan and I were processing the information that had just been handed down to us from a perinatologist in Austin, Texas informing us that our son had spina bifida. Finding out that something is wrong with your child is completely overwhelming. I’ve said before in that moment, there was really no…
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That Introvert Swagger…

That's all the hours in a week, if you didn't know. All of them. Every. Single. One of them. You hear me, introverts? ALL. All the ones when you want to walk around the house in your sweats and no bra. The ones when you and your husband get in a fight about which one of you said they would pick up some bread. The hours when your kids are off the chain and you're not sure if you should have them or yourself committed.
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A Paralyzing Gift

I get so wrapped up in the day to day of doctor appointments and medical conversations that often times I forget to stop and actually think what these diagnoses might feel like to a "typical" person.
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Out of Body Experience

Late night fun outside, just riding bikes and jumping on trampolines, playing pretend with the neighbors and your siblings. Not a worry in the world. Not in my world anyway. I was free - for just a moment.
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Like a Sore Thumb

I do not want to conform to the world. I want to look like the opposite of the world...
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The Old Ball and Chain…

And so, I will adjust my posture from one of annoyance, to that of gratefulness.
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He Love Me, He Loves Me Not

I used to believe that because I was not able to pick all of the circumstances life handed to me, they were second rate circumstances. But now I realize, I do get a choice...
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Shoe Fall, Don’t Bother Me

Our family does have fun, but it is work to master it all. Yet we do it. Because we want to enjoy life, no matter what it looks like. Life is a gift and we try and treasure each day we've been gifted and use it to the most of our ability. 
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Would You Like the Leather Package?

I’ve come to realize you have to be so deeply in love with Jesus that if all of these things in your life disappear and if all the people in your life fall away, that He will be your rock and your steady fortress.
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Johnna Hensley

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