Spina Bifida

This _____________ Life

But it turns out, though my heart may break at times, and though I may feel alone, I am not alone.
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Remarkably Loved

For whoever out there, like me, can easily feel unworthy and unnoticed, there is good news.
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What are you working for today?

What are you working for today? - Looking at life through an eternal lens.
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Perspective Providers

I sit down right now in front of my computer as Hayden sleeps, uncomfortably, with a low grade fever. He has been on his vent all day for extra rest time as well as additional treatments as he battles what, most likely, is a virus. Something you and I would just deal with, take a…
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Perspective Providers

I sit down right now in front of my computer as Hayden sleeps, uncomfortably, with a low grade fever. He has been on his vent all day for extra rest time as well as additional treatments as he battles what, most likely, is a virus. Something you and I would just deal with, take a…
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The Sore Truth

There are so many things that are unfair in this life. This evening we discovered what (at this point) we’re assuming is a pressure sore on Hayden’s back. He’s never had any pressure sores any where so this is a brand new experience for us. Something that’s not a new experience, though, is my brain…
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Home Is Where Our School Is

You know that nudge? You know, that really, really quiet inner voice in your spirit that ever so gently nudges you along? You have to get real still and real quiet to hear it. Lots of times life keeps us all so busy and occupied that we forget to get real still and real quiet…
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Cheers!

As 2016 comes to a close and I reflect on all it brought myself and our family, my gut reaction is to scream “good riddance!” This year was one of loss and heartache, struggle and fear. But it was also a year of hope and relationship. This was a year that through leaps of faith…
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Looking at the Bright Side is Causing Me to Go Blind

An honest perspective of the struggle of life as a special needs mom.
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*Insert Shameless Plug Here*

Over the last year, I have enjoyed blogging here and there about key events in our family’s journey. When a post comes to life, it is strictly because the Spirit has moved in me and I literally HAVE to write it down. My prayer is that there is a reason for that prompting and that…
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Johnna Hensley

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